Like everyone else, I am completely shocked at the images from Moore, Oklahoma, and so heartbroken for the loss of life. The devastation is incomprehensible. My heart, thoughts, and prayers are with everyone across the midwest who has been affected by recent storms and tornadoes. I am absolutely in awe of the thankful spirits of those who have lost everything … Continue reading
Originally posted on 22w6d:
Some of my favorite times of the day are spent snuggling with James. I love when he climbs into my lap and just wants to sit, or when he lays his head on my shoulder and gives me gentle little pats. He’s getting older now and will say, “hug” as he lays his head…
A few things I never thought I’d say: “James, don’t bite your arm.” “James, don’t drag your head across the floor.” and my favorite, “James, don’t lick the tree, (short pause) or the telephone pole!” Our latest challenge continues to be addressing James’ sensory needs. He has a variety of them, and they seem to … Continue reading
Originally posted on 22w6d:
In honor of Nurse Appreciation Week, this Flashback Friday is a re-post of a blog from January. James had just left the ICU after almost three weeks, and I wrote this to thank the amazing nurses and RT’s that took care of him and us during such a difficult time.…
I’ve thought about writing this post many times. I haven’t been able to do it yet for a few reasons, mostly because I know it will be impossibly hard to say in words how much James’ NICU nurses mean to us. There are no words to describe how amazing they are, or explain the impact they had on our lives. This week is … Continue reading
One of the greatest comforts for me is the touch of another person. Whether it’s a hug, holding their hand, a pat on the back, or just sitting close enough to feel that person beside me, someone else’s presence is very reassuring. Their touch can give me confidence, take away fear, relieve worry; it lets me know I’m … Continue reading
A day late because sometimes life happens on it’s own schedule, not mine. For 11 years I worked with Early Childhood Intervention, assisting families with the developmental delays of their children, and helping them through the transition process as their children neared the age of three. I’ve talked families through the steps of being referred to the Preschool Program for … Continue reading
I love this photo of James! His nurse, Lisa, taught me how to do a Developmental Bath. Bath time can be stressful for some babies, and they were concerned it would be for James. Doing a Developmental Bath kept him partially covered in the bath, allowing the weight of the blankets to help define his … Continue reading
Part of keeping my sanity through our NICU journey and beyond has involved finding online support groups to draw strength from. It is incredibly comforting to know others have been where you are and survived. Not to mention how helpful it is bounce questions off people with experience and insight. Sometimes I feel like they know me better than … Continue reading
Our thoughts, prayers, and hearts are with everyone in West, Texas and Boston. Continue reading
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