I recently discovered a new world. The world of podcasts. Maybe discovered isn’t the right word. I knew they were there, and I even downloaded a couple a few years ago to listen to on a very long road trip. They didn’t really keep my interest though, and that was pretty much my experience with them, until now. One of my … Continue reading
At least not yet… I am so happy and excited right now I could burst. We’ve been looking for activities to get James involved with in our community. Hoping to find something that’s fun for him, and something that works on developmental goals and social skills. It’s proven to be a little more difficult than it should be, but I think … Continue reading
A friend of mine would pose that question whenever we had discussions about preemies and gestational age. She didn’t say it quite that bluntly, but did clearly state that James could have been 23 weeks and 3 or 4 days when he was born. In fact, she thinks it is likely he was 23 weeks and some number of … Continue reading
We finally saw James’ new neurologist. Not impressed with the ability of his former doctors to make a referral, but like Pete would say, “It’s all good.” James has had several seizures since our move. This has followed the same pattern we’ve seen since he began having seizures back in April. At first his medication works, seizures stop, all … Continue reading
James has never been one to have huge meltdowns or unmanageable tantrums. Believe me, we’re thankful and know that we’re very fortunate. They’ve been happening a little more frequently since we moved. In order to get a handle on this, and to get some insight into how best to help James in all areas of … Continue reading
One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily in the tub, I couldn’t hold them back any longer. He had no idea what was coming. … Continue reading
James has been doing therapeutic riding for several weeks now. I’m so thankful we found Wings of Hope Equitherapy. They are an incredible organization. This is definitely one of the best, most effective therapies James has received. He is growing and changing with every visit. I didn’t realize the profound impact therapeutic riding would have … Continue reading
We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading
It’s been a big couple of weeks around here. So many new things happening all at once. No wonder James is experiencing some anxiety. Poor little munchkin. I’m so grateful to the wonderful instructors at Music Together Dallas who are helping us work through his anxiety so he can enjoy music class again. Thursday we … Continue reading
If you’ve followed along with James for any time, you know that he LOVES music. Music has had a huge impact on him right from the beginning. We sing all kinds of songs with James, from your typical toddler stuff, to oldies, The Beatles, Ramones, TSO, Bon Jovi…he loves it all. He sings much more … Continue reading
Fragile Babies. Strong Support.
A wandering exploration of all things of interest to those who care for ill newborns
The weblog about Behavior
