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Tag Archives: Kennedy Krieger Institute

Weight Gain, Growth, and Percentiles; Little Guy Isn’t So Little Anymore!
Life After NICU

Weight Gain, Growth, and Percentiles; Little Guy Isn’t So Little Anymore!

Posted on August 19, 2014 by Alison • 4 Comments

One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily in the tub, I couldn’t hold them back any longer. He had no idea what was coming. … Continue reading →

Baltimore, Day 1
Life After NICU

Baltimore, Day 1

Posted on September 16, 2013 by Alison • 1 Comment

Counting down the final minutes of our first day. We made it. I’m hoping this is the toughest it’ll get, although I’m not entirely convinced that will be the case. A few of my favorite things from today: Everyone is incredibly kind. Seems a little cliché to call that one of my favorite things, but when … Continue reading →

Butterflies and Restlessness, The Night Before it All Begins
Life After NICU

Butterflies and Restlessness, The Night Before it All Begins

Posted on September 15, 2013 by Alison • 2 Comments

We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs. Had a few … Continue reading →

James and His Tube, A Little Update
Life After NICU

James and His Tube, A Little Update

Posted on September 10, 2013 by Alison • 4 Comments

Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading →

James’ Feeding Evaluation: A Peek into The Kennedy Krieger Institute
Life After NICU

James’ Feeding Evaluation: A Peek into The Kennedy Krieger Institute

Posted on July 30, 2013 by Alison • 2 Comments

We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then getting what you ask for. It doesn’t happen often, so when it does it’s a moment worthy of … Continue reading →

Vacation with James – We Loved Every Bit of It!
My Days With James

Vacation with James – We Loved Every Bit of It!

Posted on July 26, 2013 by Alison • 2 Comments

My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’ evaluation at The Kennedy Krieger Institute. (It was even better than I hoped!) We began … Continue reading →

Sometimes You Have to Ask for What You Want
Life After NICU

Sometimes You Have to Ask for What You Want

Posted on July 2, 2013 by Alison • 2 Comments

I think it’s good to put what you want out into the universe every once in awhile. For me it brings much-needed focus, gives me a little accountability, and it helps me define exactly what it is that I want. I believe when all that is going in your favor only good things can happen. When James was … Continue reading →

Vacation and a Feeding Evaluation, A Look Ahead
Life After NICU

Vacation and a Feeding Evaluation, A Look Ahead

Posted on June 26, 2013 by Alison • 2 Comments

James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment for James. James continues to struggle with feeding. I’m sure that comes as no surprise to you as I … Continue reading →

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Tim Villegas

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