One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily in the tub, I couldn’t hold them back any longer. He had no idea what was coming. … Continue reading
Counting down the final minutes of our first day. We made it. I’m hoping this is the toughest it’ll get, although I’m not entirely convinced that will be the case. A few of my favorite things from today: Everyone is incredibly kind. Seems a little cliché to call that one of my favorite things, but when … Continue reading
We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs. Had a few … Continue reading
Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading
We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then getting what you ask for. It doesn’t happen often, so when it does it’s a moment worthy of … Continue reading
My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’ evaluation at The Kennedy Krieger Institute. (It was even better than I hoped!) We began … Continue reading
I think it’s good to put what you want out into the universe every once in awhile. For me it brings much-needed focus, gives me a little accountability, and it helps me define exactly what it is that I want. I believe when all that is going in your favor only good things can happen. When James was … Continue reading
James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment for James. James continues to struggle with feeding. I’m sure that comes as no surprise to you as I … Continue reading
I write mainly about education and inclusion, but my kids insist that all I do is "type."
Fragile Babies. Strong Support.
A wandering exploration of all things of interest to those who care for ill newborns
The weblog about Behavior
