There is something about the first time your baby is placed on your chest, skin to skin, that feels almost holy. The fragile nature of it, feeling your baby for the first time, beginning to truly bond, whispering little words of love; it is magical. Amid the reality and harshness of the NICU, Kangaroo Care is one of the most loving, … Continue reading
Tag Archives: Flashback Friday
Quality of Life and Viability, The Debate Continues
Originally posted on 22w6d:
I was getting ready to work on my blog, prepared to write about truly enjoying James’ third birthday without any of the anxiety that has come each year at this time, when I read End of Life, at Birth, an Op-Ed piece that appeared in The New York Times August 5th. The author, April R. Dworetz, is…
A Day to be Thankful
Happy Coming Home Day James! Four years ago today we brought our sweet little baby boy home from the NICU. I cried, a lot. Wasn’t prepared for the crazy, conflicting emotions bringing our munchkin home would cause. It snowed, quite a bit considering we lived in Dallas. My mom drove through downtown by herself, in the snow. … Continue reading
Recovering From RSV and Pneumonia, One Year Later
One year ago today we brought our little guy home from Our Children’s House, a rehab facility in Dallas. For those of you new to 22w6d, James spent five weeks in the hospital and ten days at OCH last winter due to RSV and pneumonia. We left OCH before James was ready, but he was … Continue reading
…And Bob’s Your Uncle
Guest post today by my husband, Andy. He shares a little of his perspective on James’ NICU journey. Thank you Andy! The Brits have a saying that is quite unique and very random sounding to those who have never heard it before. “And Bob’s your uncle.” For those who are unfamiliar with the saying, it means that … Continue reading
You’ve Come a Long Way, Baby!
I can’t believe it’s been three years. In some ways it feels like just yesterday, and in others it feels like a lifetime ago. For three years James has amazed and surprised me, made me smile more than ever, made me laugh every day, kept me on my toes, brought wonderful people into my life, shown me … Continue reading
A Peek Into the NICU, Touch-Time for James
A little peek into the NICU. This video was taken when James was just over two months old. Assessments like this one were done every three hours throughout the day and night. This was referred to as a “touch time” and was the best time for us to interact with James. They grouped his care … Continue reading
Visiting Children’s Medical Center, Dallas, for a Wonderful Celebration!
It’s not often that we go to Children’s Medical Center for a reason other than illness, usually James’ illness. In fact I don’t think I’ve ever been there for any other reason until a few days ago. A few months back James was very sick. He spent five weeks in Children’s Medical Center. One day … Continue reading
Bananas Over Mommy
So the blog has been a little quiet recently. We enjoyed a little mini-vacation visiting some of my family. Should be back on track for June. July will be a little hit and miss as James and I will be out of town for three weeks. I will try to keep it updated however, as … Continue reading
The Healing Quality of Touch in the NICU
One of the greatest comforts for me is the touch of another person. Whether it’s a hug, holding their hand, a pat on the back, or just sitting close enough to feel that person beside me, someone else’s presence is very reassuring. Their touch can give me confidence, take away fear, relieve worry; it lets me know I’m … Continue reading