We are very grateful that we’ve been able to create some beautiful Christmas memories with James. Each Christmas has been the ‘Best Christmas Ever’ at the time. Here are a few of our favorites. James was still in the NICU for his first Christmas. ‘Best Christmas Ever’ because, against enormous odds, he was here! Made even more special because I fed him … Continue reading
James’ reunion with his Daddy was more than perfect. You never know what to expect with James. There was no doubt in my mind that he would know exactly who Andy was when he saw him. I was sure James would be excited to see him, too. What I wasn’t sure of, was how James would react. Sometimes … Continue reading
Today is World Prematurity Awareness Day. In honor of that I created a little video that highlights photos of James and his journey after being born early. I was aware of prematurity before James was born, but I didn’t fully understand the impact prematurity can have on a child and family until we went through … Continue reading
James rolls with most things, we’re very fortunate in that regard. He had a couple of weeks when screaming increased, he didn’t sleep well, and he would lead me to the car and want to “go.” Heartbreaking for sure. He’s good now, though. When we pull up in our driveway he exclaims, “We’re home!” (Or says, … Continue reading
Some experiences are too cool for words, and this was one of them! Well, maybe just a few… James had never been in a bounce house of any kind until just a few days ago. He’s hooked, big time! He had the most amazing smile once he started to figure it out. Even the ‘bounce … Continue reading
About a year ago I was just finishing my first month as a stay-at-home-mom. It was new and exciting and I loved every bit of it. And I still love being home with James. I feel very fortunate to have this time with him. He’s growing and changing all the time and I get to … Continue reading
I was getting ready to work on my blog, prepared to write about truly enjoying James’ third birthday without any of the anxiety that has come each year at this time, when I read End of Life, at Birth, an Op-Ed piece that appeared in The New York Times August 5th. The author, April R. Dworetz, is a neonatologist and an assistant professor … Continue reading
My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’ evaluation at The Kennedy Krieger Institute. (It was even better than I hoped!) We began … Continue reading
James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment for James. James continues to struggle with feeding. I’m sure that comes as no surprise to you as I … Continue reading
My latest contribution to Preemie Babies 101, in honor of Father’s Day… Having a baby in the neonatal intensive care unit is a very personal experience. While we face many similar circumstances and the same uncertainty of what the future holds, how we cope from day-to-day can be different for each one of us. I’m … Continue reading
NICU Babies. Parent Support.
The weblog about Behavior
My lifesaving journey...
22w6d 