A little quicker than we anticipated, James is completely off Keppra, and wow, what a difference. We expected it would take a little time to see a change in him while the medicine is fully flushed from his body, but the change has been rapid. Rapid, and so, so good!! James is still a four year old with strong opinions … Continue reading
Tag Archives: medication
Dear Seizure Meds, What Have You Done With My Sweet Child?
I adore my little guy and love him more than anything. He is the reason behind every single thing I do. I love exactly who he is and am so proud of everything he has accomplished. But some days with James are particularly hard, like yesterday. James has been challenging from the beginning, really since pregnancy. He makes us … Continue reading
A Quick Update From Neurology
We finally saw James’ new neurologist. Not impressed with the ability of his former doctors to make a referral, but like Pete would say, “It’s all good.” James has had several seizures since our move. This has followed the same pattern we’ve seen since he began having seizures back in April. At first his medication works, seizures stop, all … Continue reading
There’s No Place Like Home
Medications. They are the life-line of the nicu. Something is always being given, usually multiple meds at once. At times they’re lined up, too many meds and not enough lines to give them. You wonder about side effects, and research them if you’re brave, but you rarely say no because these medications are helping your … Continue reading