There is something about the first time your baby is placed on your chest, skin to skin, that feels almost holy. The fragile nature of it, feeling your baby for the first time, beginning to truly bond, whispering little words of love; it is magical. Amid the reality and harshness of the NICU, Kangaroo Care is one of the most loving, … Continue reading
We are very grateful that we’ve been able to create some beautiful Christmas memories with James. Each Christmas has been the ‘Best Christmas Ever’ at the time. Here are a few of our favorites. James was still in the NICU for his first Christmas. ‘Best Christmas Ever’ because, against enormous odds, he was here! Made even more special because I fed him … Continue reading
James learned a new phrase over the past few weeks. “More Christmas please.” It is SUPER cute when he says it! Melts my heart and pretty much gets him whatever he wants. Believe me, if your child has a speech delay and they come up with a phrase like that, they get Pete the Cat Saves Christmas read for the eighth … Continue reading
We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading
My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’ evaluation at The Kennedy Krieger Institute. (It was even better than I hoped!) We began … Continue reading
It’s not often that we go to Children’s Medical Center for a reason other than illness, usually James’ illness. In fact I don’t think I’ve ever been there for any other reason until a few days ago. A few months back James was very sick. He spent five weeks in Children’s Medical Center. One day … Continue reading
My latest contribution to Preemie Babies 101, in honor of Father’s Day… Having a baby in the neonatal intensive care unit is a very personal experience. While we face many similar circumstances and the same uncertainty of what the future holds, how we cope from day-to-day can be different for each one of us. I’m … Continue reading
And so it begins. I knew it would happen at some point. It was bound to. James is different from most kids and different isn’t good when you’re a child. Different gets you picked on. But he’s only two, I thought I’d have a few more years before I’d feel compelled to come to his defense with another child. … Continue reading
So the blog has been a little quiet recently. We enjoyed a little mini-vacation visiting some of my family. Should be back on track for June. July will be a little hit and miss as James and I will be out of town for three weeks. I will try to keep it updated however, as … Continue reading
Like everyone else, I am completely shocked at the images from Moore, Oklahoma, and so heartbroken for the loss of life. The devastation is incomprehensible. My heart, thoughts, and prayers are with everyone across the midwest who has been affected by recent storms and tornadoes. I am absolutely in awe of the thankful spirits of those who have lost everything … Continue reading
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