Two weeks ago I told you about the changes we made in our own eating habits that lead to some big changes for James. We officially have six days left of our Whole30 challenge, but we’re taking it through the end of next week. We’re all feeling better, have more energy, and experiencing weight loss … Continue reading
One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily in the tub, I couldn’t hold them back any longer. He had no idea what was coming. … Continue reading
We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading
Just over a year ago, as we were getting ready to take James to Baltimore for an important evaluation, we were specific in requesting exactly the outcome we wanted. We had one important goal for that trip. We put it out there, making our request known to the universe, and we achieved our goal. We find … Continue reading
Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading
Sitting in a hospital room, watching James sleep, tracking his vitals on a monitor. An all too familiar situation. We’ve been here a few times before, but this time there’s one very big difference. This time he’s not just recovering, he’s getting ready for a new beginning. One that starts with a well-nourished, healthy little boy. That makes … Continue reading
Part of keeping my sanity through our NICU journey and beyond has involved finding online support groups to draw strength from. It is incredibly comforting to know others have been where you are and survived. Not to mention how helpful it is bounce questions off people with experience and insight. Sometimes I feel like they know me better than … Continue reading
When James saw his pediatrician last week for a monthly weight check we discovered he lost 100 grams. Nothing big and not concerning to his doctor, but a little disappointing to us as we work so hard each day getting him to eat. His doctor told me not to worry about his weight gain (or … Continue reading
Our stay at Children’s Medical Center has finally come to an end. A reason to celebrate, right? I want to have that sense of relief, knowing he no longer requires that level of care, but instead I find myself full of mixed emotions. Some of it certainly comes from having to adjust to a new setting. He’s out of … Continue reading
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My lifesaving journey...
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