There is an amazingly hopeful article in the NY Times about the survival of 22 weekers. I can’t begin to describe how I felt as I read that article. There are doctors who agree that viability could begin under 23 weeks. There is hope!! The following letter is sitting in envelopes ready to be mailed, … Continue reading
A little quicker than we anticipated, James is completely off Keppra, and wow, what a difference. We expected it would take a little time to see a change in him while the medicine is fully flushed from his body, but the change has been rapid. Rapid, and so, so good!! James is still a four year old with strong opinions … Continue reading
Happy Coming Home Day James! Four years ago today we brought our sweet little baby boy home from the NICU. I cried, a lot. Wasn’t prepared for the crazy, conflicting emotions bringing our munchkin home would cause. It snowed, quite a bit considering we lived in Dallas. My mom drove through downtown by herself, in the snow. … Continue reading
James learned a new phrase over the past few weeks. “More Christmas please.” It is SUPER cute when he says it! Melts my heart and pretty much gets him whatever he wants. Believe me, if your child has a speech delay and they come up with a phrase like that, they get Pete the Cat Saves Christmas read for the eighth … Continue reading
We’re always thankful for James. Not a day goes by that I’m not cognizant of the fact that our lives could be very different. That reality is clearer than ever now, as I’ve been researching prematurity and viability for a personal project. I expected to find controversy and a range of opinions regarding viability of the earliest micro preemies. I have … Continue reading
We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading
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My lifesaving journey...
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