Yesterday, November 30th, was the final day of Prematurity Awareness Month. It was also the day, six years ago, that James was due to be born. But on November 30th six years ago, James was already 120 days old. 17.14 weeks. He had gone from weighing 15 ounces to a whopping five pounds. … Continue reading
Category Archives: Life After NICU
World Prematurity Awareness Day 2016
Every year during the month of November I share photos and memories about James’ premature birth. I’m sure some friends grow tired of the flood of preemie posts, but November is Prematurity Awareness Month. There is no cause more dear to my heart than prematurity. Continue reading
Dear NICU Doctor
There is an amazingly hopeful article in the NY Times about the survival of 22 weekers. I can’t begin to describe how I felt as I read that article. There are doctors who agree that viability could begin under 23 weeks. There is hope!! The following letter is sitting in envelopes ready to be mailed, … Continue reading
He Has a New Trick, and I Have a New Obsession
I recently discovered a new world. The world of podcasts. Maybe discovered isn’t the right word. I knew they were there, and I even downloaded a couple a few years ago to listen to on a very long road trip. They didn’t really keep my interest though, and that was pretty much my experience with them, until now. One of my … Continue reading
Wrong Once, Good, Maybe You’ll Be Wrong Twice
A little quicker than we anticipated, James is completely off Keppra, and wow, what a difference. We expected it would take a little time to see a change in him while the medicine is fully flushed from his body, but the change has been rapid. Rapid, and so, so good!! James is still a four year old with strong opinions … Continue reading
Food and Nutrition; Look Out, More Change is Coming!
Two weeks ago I told you about the changes we made in our own eating habits that lead to some big changes for James. We officially have six days left of our Whole30 challenge, but we’re taking it through the end of next week. We’re all feeling better, have more energy, and experiencing weight loss … Continue reading
Food, It’s What’s For Dinner, and It’s (Going To Be) Real
Some of you already know that my mom, my husband, and I began a Whole30 challenge just over a week ago. Our goal is to kick some of our bad eating habits and get healthier in the process. We’re going strong on Day 11. I wouldn’t say it’s been easy, but it hasn’t been nearly as difficult as I imagined. … Continue reading
Dear Seizure Meds, What Have You Done With My Sweet Child?
I adore my little guy and love him more than anything. He is the reason behind every single thing I do. I love exactly who he is and am so proud of everything he has accomplished. But some days with James are particularly hard, like yesterday. James has been challenging from the beginning, really since pregnancy. He makes us … Continue reading
Five Christmases
We are very grateful that we’ve been able to create some beautiful Christmas memories with James. Each Christmas has been the ‘Best Christmas Ever’ at the time. Here are a few of our favorites. James was still in the NICU for his first Christmas. ‘Best Christmas Ever’ because, against enormous odds, he was here! Made even more special because I fed him … Continue reading
Christmas Magic and TSO
James learned a new phrase over the past few weeks. “More Christmas please.” It is SUPER cute when he says it! Melts my heart and pretty much gets him whatever he wants. Believe me, if your child has a speech delay and they come up with a phrase like that, they get Pete the Cat Saves Christmas read for the eighth … Continue reading