One of the greatest comforts for me is the touch of another person. Whether it’s a hug, holding their hand, a pat on the back, or just sitting close enough to feel that person beside me, someone else’s presence is very reassuring. Their touch can give me confidence, take away fear, relieve worry; it lets me know I’m … Continue reading
Part of keeping my sanity through our NICU journey and beyond has involved finding online support groups to draw strength from. It is incredibly comforting to know others have been where you are and survived. Not to mention how helpful it is bounce questions off people with experience and insight. Sometimes I feel like they know me better than … Continue reading
How young is too young, and who is it that makes that decision? You are the person I want to talk with. You are the person who needs to meet James. Had the NICU team attending James’ delivery known his correct gestational age, they would have done nothing. The NICU team would not have been … Continue reading
Some of my favorite times of the day are spent snuggling with James. I love when he climbs into my lap and just wants to sit, or when he lays his head on my shoulder and gives me gentle little pats. He’s getting older now and will say, “hug” as he lays his head against me. It just doesn’t … Continue reading
When I was pregnant with James I did like so many others and read all the baby books I could find. I wanted to know what to do, how to be a good mom. It was all new and I needed all the tips I could get. Many things changed with James’ premature birth, but … Continue reading
Time is so precious. It definitely seems to be going faster, I guess that comes with age. And no matter how early the day starts, or how late it ends, there never seems to be enough of it. There are so many demands on our time each day. Some of them are welcome while others … Continue reading
Our stay at Children’s Medical Center has finally come to an end. A reason to celebrate, right? I want to have that sense of relief, knowing he no longer requires that level of care, but instead I find myself full of mixed emotions. Some of it certainly comes from having to adjust to a new setting. He’s out of … Continue reading
In honor of Nurse Appreciation Week, this Flashback Friday is a re-post of a blog from January. James had just left the ICU after almost three weeks, and I wrote this to thank the amazing nurses and RT’s that took care of him and us during such a difficult time. During every hospitalization, and James … Continue reading
When I taught first grade we had two rules in our classroom: Do the Right Thing, and Always Be Kind. We never had an issue come up that couldn’t be addressed by one of them. Pretty simple really. I wish I could say I live by them in my day to day life. I try, … Continue reading
NICU Babies. Parent Support.
A wandering exploration of all things of interest to those who care for ill newborns
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