Sitting in a hospital room, watching James sleep, tracking his vitals on a monitor. An all too familiar situation. We’ve been here a few times before, but this time there’s one very big difference. This time he’s not just recovering, he’s getting ready for a new beginning. One that starts with a well-nourished, healthy little boy. That makes … Continue reading
I was getting ready to work on my blog, prepared to write about truly enjoying James’ third birthday without any of the anxiety that has come each year at this time, when I read End of Life, at Birth, an Op-Ed piece that appeared in The New York Times August 5th. The author, April R. Dworetz, is a neonatologist and an assistant professor … Continue reading
We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then getting what you ask for. It doesn’t happen often, so when it does it’s a moment worthy of … Continue reading
I think it’s good to put what you want out into the universe every once in awhile. For me it brings much-needed focus, gives me a little accountability, and it helps me define exactly what it is that I want. I believe when all that is going in your favor only good things can happen. When James was … Continue reading
James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment for James. James continues to struggle with feeding. I’m sure that comes as no surprise to you as I … Continue reading
It’s been about five weeks since we developed a plan to address James’ sensory processing difficulties. I wanted to post an update sooner, but he’s been sick for about three of those weeks. Because he hasn’t felt well, I haven’t been as structured as I wanted to be with the changes to James’ daily routine. … Continue reading
My latest contribution to Preemie Babies 101, in honor of Father’s Day… Having a baby in the neonatal intensive care unit is a very personal experience. While we face many similar circumstances and the same uncertainty of what the future holds, how we cope from day-to-day can be different for each one of us. I’m … Continue reading
Just over a month ago we began the transition process for James to move from Early Childhood Intervention to the Preschool Program for Children with Disabilities (PPCD). ECI will end when James turns three, and he’ll be three in less than 2 months. Time truly goes so quickly. I am the luckiest Mommy in the … Continue reading
And so it begins. I knew it would happen at some point. It was bound to. James is different from most kids and different isn’t good when you’re a child. Different gets you picked on. But he’s only two, I thought I’d have a few more years before I’d feel compelled to come to his defense with another child. … Continue reading
Like everyone else, I am completely shocked at the images from Moore, Oklahoma, and so heartbroken for the loss of life. The devastation is incomprehensible. My heart, thoughts, and prayers are with everyone across the midwest who has been affected by recent storms and tornadoes. I am absolutely in awe of the thankful spirits of those who have lost everything … Continue reading
The weblog about Behavior
My lifesaving journey...
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