We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for his developmental delays, and the other is causing his seizures. Both are common in premature birth, and both will have life-long implications.
We’re all staying focused on the positive, but this news did make me a little sad. The past few years in therapy all we’ve talked about is catching up. The goal has been getting James caught up to his peers before he starts school. With this news comes the reality that there is probably no magical catching up time for James. He works hard at everything, and he will have to keep working hard. Thank goodness he has a fighting spirit and doesn’t get knocked down by a challenge. These traits will serve him well for years to come.
We’ll take this information and learn from it. We’ll find more effective ways to help James, and we’ll keep fighting right along side him. He is the same amazing little munchkin he was before, who makes me smile and laugh every day. The only difference now is I’m even more thankful for every single thing he can do, and for the strength he has within himself to overcome any obstacle in his path. Fight on little man!