Today is World Prematurity Awareness Day. In honor of that I created a little video that highlights photos of James and his journey after being born early. I was aware of prematurity before James was born, but I didn’t fully understand the impact prematurity can have on a child and family until we went through … Continue reading
Where to begin…so much time has passed, and my little guy has made amazing changes these last few months. I think an old-fashioned update with a few cute photos is in order. First of all, James is still eating! He’s growing and gaining weight – he even gained half a pound while fighting off a … Continue reading
Guest post today by my husband, Andy. He shares a little of his perspective on James’ NICU journey. Thank you Andy! The Brits have a saying that is quite unique and very random sounding to those who have never heard it before. “And Bob’s your uncle.” For those who are unfamiliar with the saying, it means that … Continue reading
August is Breastfeeding Awareness Month. For some moms with babies in the NICU breastfeeding isn’t an option for quite some time. In order to provide the much-needed breast milk to their babies, many moms choose to pump. I pumped for four months for James without much success. But, when feedings are measured in fifths of a … Continue reading
I was getting ready to work on my blog, prepared to write about truly enjoying James’ third birthday without any of the anxiety that has come each year at this time, when I read End of Life, at Birth, an Op-Ed piece that appeared in The New York Times August 5th. The author, April R. Dworetz, is a neonatologist and an assistant professor … Continue reading
A little peek into the NICU. This video was taken when James was just over two months old. Assessments like this one were done every three hours throughout the day and night. This was referred to as a “touch time” and was the best time for us to interact with James. They grouped his care … Continue reading
And so it begins. I knew it would happen at some point. It was bound to. James is different from most kids and different isn’t good when you’re a child. Different gets you picked on. But he’s only two, I thought I’d have a few more years before I’d feel compelled to come to his defense with another child. … Continue reading
So the blog has been a little quiet recently. We enjoyed a little mini-vacation visiting some of my family. Should be back on track for June. July will be a little hit and miss as James and I will be out of town for three weeks. I will try to keep it updated however, as … Continue reading
Like everyone else, I am completely shocked at the images from Moore, Oklahoma, and so heartbroken for the loss of life. The devastation is incomprehensible. My heart, thoughts, and prayers are with everyone across the midwest who has been affected by recent storms and tornadoes. I am absolutely in awe of the thankful spirits of those who have lost everything … Continue reading
Originally posted on 22w6d:
Some of my favorite times of the day are spent snuggling with James. I love when he climbs into my lap and just wants to sit, or when he lays his head on my shoulder and gives me gentle little pats. He’s getting older now and will say, “hug” as he lays his head…
The weblog about Behavior
My lifesaving journey...
22w6d 