We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then getting what you ask for. It doesn’t happen often, so when it does it’s a moment worthy of … Continue reading
I think it’s good to put what you want out into the universe every once in awhile. For me it brings much-needed focus, gives me a little accountability, and it helps me define exactly what it is that I want. I believe when all that is going in your favor only good things can happen. When James was … Continue reading
A little peek into the NICU. This video was taken when James was just over two months old. Assessments like this one were done every three hours throughout the day and night. This was referred to as a “touch time” and was the best time for us to interact with James. They grouped his care … Continue reading
James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment for James. James continues to struggle with feeding. I’m sure that comes as no surprise to you as I … Continue reading
It’s been about five weeks since we developed a plan to address James’ sensory processing difficulties. I wanted to post an update sooner, but he’s been sick for about three of those weeks. Because he hasn’t felt well, I haven’t been as structured as I wanted to be with the changes to James’ daily routine. … Continue reading
My latest contribution to Preemie Babies 101, in honor of Father’s Day… Having a baby in the neonatal intensive care unit is a very personal experience. While we face many similar circumstances and the same uncertainty of what the future holds, how we cope from day-to-day can be different for each one of us. I’m … Continue reading
Just over a month ago we began the transition process for James to move from Early Childhood Intervention to the Preschool Program for Children with Disabilities (PPCD). ECI will end when James turns three, and he’ll be three in less than 2 months. Time truly goes so quickly. I am the luckiest Mommy in the … Continue reading
And so it begins. I knew it would happen at some point. It was bound to. James is different from most kids and different isn’t good when you’re a child. Different gets you picked on. But he’s only two, I thought I’d have a few more years before I’d feel compelled to come to his defense with another child. … Continue reading
So the blog has been a little quiet recently. We enjoyed a little mini-vacation visiting some of my family. Should be back on track for June. July will be a little hit and miss as James and I will be out of town for three weeks. I will try to keep it updated however, as … Continue reading
Originally posted on 22w6d:
Some of my favorite times of the day are spent snuggling with James. I love when he climbs into my lap and just wants to sit, or when he lays his head on my shoulder and gives me gentle little pats. He’s getting older now and will say, “hug” as he lays his head…
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