Life After NICU

Butterflies and Restlessness, The Night Before it All Begins

We’re here.

We’re really doing this.

Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs.

Had a few sad moments today. I can’t believe Andy is leaving tomorrow. He has said that I’m brave, but I think he’s the stronger one. I can’t imagine how hard it would be to get on a plane tomorrow, go back home, and not see our sweet little boy again for six weeks. That’s bravery. And a really good Daddy, setting aside his own feelings and doing what’s best for James.

So we decided to fill the day with lots of fun for James. We spent much of our day at the Port Discovery Children’s Museum. James LOVED it! It was the perfect time to be there – no big crowds and lots of room for James to run. And run he did, until he wore himself completely out. He was asleep within a couple of minutes of getting back in his stroller. His sleep allowed us time to visit with a wonderful woman we met in the gift shop who has experience with the Kennedy Krieger Institute. She had nothing but good things to say, and she’s going to pray for James. Couldn’t ask for anything better than that to send us on our way.


He loved crawling around in the Bug, but wouldn’t drive.


Lots of attempts at building a rainbow, but he just couldn’t stand it and had to knock them all down.


He loves to push buttons and he loves lights, so this was perfect!

Lots of running and climbing!

Lots of running and climbing!


Catching butterflies with Daddy.


When he finds any kind of enclosed space he’s happy.


Soccer with Daddy.


Another favorite.


And he sleeps…

2 thoughts on “Butterflies and Restlessness, The Night Before it All Begins

  1. Thanks for sharing these wonderful pictures! I can only imagine how difficult it will be for Andy to leave you both. But when he sees James again, he will see a healthier James. And that is the important thing. Know that we will be praying for you all, and we will be thinking of you on this journey! Lots of love and hugs!

    • Thanks Debbie! I will be reminding myself of your words often…a healthier James. That is what will make this all worthwhile. Really appreciate your prayers and words of encouragement. Thank you.

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