I wasn’t going to publish a blog today. There is so much happening in the world that makes anything I have to say seem trivial. But James isn’t trivial, and some people have told me that he gives them hope. I think we need a whole lot of hope, goodness, and love during times like these. Maybe James … Continue reading
This is for me. I wanted to remind myself of how far James has come with his feeding. He had a weight check this week and lost an ounce. Still choosing not to be stressed about it, but definitely disappointed. I feel like a good share of our day is spent trying to get James to eat or drink, which he’s done … Continue reading
We each have a unique perspective on the world around us. That’s part of what makes our world so interesting. We can look at the same thing, but what you see may be completely different from what I see. Thank goodness for those differences. If we didn’t have them it would be a very robotic … Continue reading
How young is too young, and who is it that makes that decision? You are the person I want to talk with. You are the person who needs to meet James. Had the NICU team attending James’ delivery known his correct gestational age, they would have done nothing. The NICU team would not have been … Continue reading
Wishing you a Happy Easter with a little smile from James. Continue reading
Most of our days start the same way. James comes pitter-pattering down the hall at some point; sometimes it’s 1 or 2 AM, sometimes it’s 6 or 7 AM. Either way we snuggle for a while (hopefully a long while if it’s 1 or 2). He announces when he’s ready to get up by sitting … Continue reading
When James was born I learned quickly to adjust my expectations. Nothing was how we thought it would be, and we had no idea what the future had in store for our family. We held onto anything positive we could find in the NICU – We had a “Foot Long” party when James was finally 12 inches long, each … Continue reading
James and I spent Monday morning at the Arboretum. I was inspired by the gorgeous photos a friend posted of her daughter over the weekend. I take tons of pictures of James, but most of the time I just use my phone. It was time to take some nice pictures. So, feeling very optimistic, we headed off … Continue reading
There are many moments from James’ NICU stay that I will never forget. Some of them bring sadness and tears, remembering the times James fought so hard to hang in there. But Many of them bring smiles and tears of joy, moments of connecting with my little peanut that I’m incredibly thankful for. This photo … Continue reading
When James saw his pediatrician last week for a monthly weight check we discovered he lost 100 grams. Nothing big and not concerning to his doctor, but a little disappointing to us as we work so hard each day getting him to eat. His doctor told me not to worry about his weight gain (or … Continue reading
The weblog about Behavior
My lifesaving journey...
22w6d 