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Category Archives: Life After NICU

Soccer Mom, Ok, But No Minivan!
Life After NICU

Soccer Mom, Ok, But No Minivan!

Posted on December 19, 2014 by Alison • 6 Comments

At least not yet… I am so happy and excited right now I could burst. We’ve been looking for activities to get James involved with in our community. Hoping to find something that’s fun for him, and something that works on developmental goals and social skills. It’s proven to be a little more difficult than it should be, but I think … Continue reading →

Was James Really 22 Weeks 6 Days?
Life After NICU / Viability

Was James Really 22 Weeks 6 Days?

Posted on December 16, 2014 by Alison • 1 Comment

A friend of mine would pose that question whenever we had discussions about preemies and gestational age. She didn’t say it quite that bluntly, but did clearly state that James could have been 23 weeks and 3 or 4 days when he was born. In fact, she thinks it is likely he was 23 weeks and some number of … Continue reading →

A Quick Update From Neurology
Life After NICU

A Quick Update From Neurology

Posted on December 9, 2014 by Alison • 3 Comments

We finally saw James’ new neurologist. Not impressed with the ability of his former doctors to make a referral, but like Pete would say, “It’s all good.” James has had several seizures since our move. This has followed the same pattern we’ve seen since he began having seizures back in April. At first his medication works, seizures stop, all … Continue reading →

‘Thank You’ Will Never Be Enough
Life After NICU

‘Thank You’ Will Never Be Enough

Posted on November 25, 2014 by Alison • 11 Comments

We’re always thankful for James. Not a day goes by that I’m not cognizant of the fact that our lives could be very different. That reality is clearer than ever now, as I’ve been researching prematurity and viability for a personal project. I expected to find controversy and a range of opinions regarding viability of the earliest micro preemies. I have … Continue reading →

Daddy Has Arrived!
Life After NICU

Daddy Has Arrived!

Posted on November 18, 2014 by Alison • 4 Comments

James’ reunion with his Daddy was more than perfect. You never know what to expect with James. There was no doubt in my mind that he would know exactly who Andy was when he saw him. I was sure James would be excited to see him, too. What I wasn’t sure of, was how James would react. Sometimes … Continue reading →

World Prematurity Awareness Day 2014
Life After NICU

World Prematurity Awareness Day 2014

Posted on November 17, 2014 by Alison • Leave a comment

Today is World Prematurity Awareness Day. In honor of that I created a little video that highlights photos of James and his journey after being born early. I was aware of prematurity before James was born, but I didn’t fully understand the impact prematurity can have on a child and family until we went through … Continue reading →

Navigating Our Way Through Meltdowns and Tantrums
Life After NICU

Navigating Our Way Through Meltdowns and Tantrums

Posted on November 12, 2014 by Alison • 7 Comments

James has never been one to have huge meltdowns or unmanageable tantrums. Believe me, we’re thankful and know that we’re very fortunate. They’ve been happening a little more frequently since we moved. In order to get a handle on this, and to get some insight into how best to help James in all areas of … Continue reading →

Life in Tennessee; Adjusting to Our Move
Life After NICU

Life in Tennessee; Adjusting to Our Move

Posted on October 24, 2014 by Alison • 2 Comments

James rolls with most things, we’re very fortunate in that regard. He had a couple of weeks when screaming increased, he didn’t sleep well, and he would lead me to the car and want to “go.” Heartbreaking for sure. He’s good now, though. When we pull up in our driveway he exclaims, “We’re home!” (Or says, … Continue reading →

Weight Gain, Growth, and Percentiles; Little Guy Isn’t So Little Anymore!
Life After NICU

Weight Gain, Growth, and Percentiles; Little Guy Isn’t So Little Anymore!

Posted on August 19, 2014 by Alison • 4 Comments

One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily in the tub, I couldn’t hold them back any longer. He had no idea what was coming. … Continue reading →

Our Phone Call, An Update on James’ MRI
Life After NICU

Our Phone Call, An Update on James’ MRI

Posted on May 21, 2014 by Alison • 8 Comments

We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading →

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About Us

  • Telling Our Story
  • The Details

Blogs I Follow

  • Tim Villegas
  • Hand to Hold
  • All Things Neonatal
  • The Behavior Analyst
  • Today's Dose of Sanity

Links

  • An Early Start
  • Kasey Mathews, Author of Preemie: Lesson in Love, Life and Motherhood
  • Life With Jack, The Story of Our 23 Week, Miracle, Micro-Preemie
  • National Premature Infant Health Coalition
  • Project Linus

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Recent Posts

  • A Little Birthday Rant
  • The Need for Change
  • World Prematurity Awareness Day 2016
  • PB 101 – Parenting One Mistake at a Time
  • Kangaroo Care Awareness Day 2015

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Tim Villegas

Hand to Hold

Fragile Babies. Strong Support.

All Things Neonatal

A wandering exploration of all things of interest to those who care for ill newborns

The Behavior Analyst

The weblog about Behavior

Today's Dose of Sanity

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