I adore my little guy and love him more than anything. He is the reason behind every single thing I do. I love exactly who he is and am so proud of everything he has accomplished. But some days with James are particularly hard, like yesterday. James has been challenging from the beginning, really since pregnancy. He makes us … Continue reading
We are very grateful that we’ve been able to create some beautiful Christmas memories with James. Each Christmas has been the ‘Best Christmas Ever’ at the time. Here are a few of our favorites. James was still in the NICU for his first Christmas. ‘Best Christmas Ever’ because, against enormous odds, he was here! Made even more special because I fed him … Continue reading
James learned a new phrase over the past few weeks. “More Christmas please.” It is SUPER cute when he says it! Melts my heart and pretty much gets him whatever he wants. Believe me, if your child has a speech delay and they come up with a phrase like that, they get Pete the Cat Saves Christmas read for the eighth … Continue reading
At least not yet… I am so happy and excited right now I could burst. We’ve been looking for activities to get James involved with in our community. Hoping to find something that’s fun for him, and something that works on developmental goals and social skills. It’s proven to be a little more difficult than it should be, but I think … Continue reading
A friend of mine would pose that question whenever we had discussions about preemies and gestational age. She didn’t say it quite that bluntly, but did clearly state that James could have been 23 weeks and 3 or 4 days when he was born. In fact, she thinks it is likely he was 23 weeks and some number of … Continue reading
We finally saw James’ new neurologist. Not impressed with the ability of his former doctors to make a referral, but like Pete would say, “It’s all good.” James has had several seizures since our move. This has followed the same pattern we’ve seen since he began having seizures back in April. At first his medication works, seizures stop, all … Continue reading
We’re always thankful for James. Not a day goes by that I’m not cognizant of the fact that our lives could be very different. That reality is clearer than ever now, as I’ve been researching prematurity and viability for a personal project. I expected to find controversy and a range of opinions regarding viability of the earliest micro preemies. I have … Continue reading
Fragile Babies. Strong Support.
A wandering exploration of all things of interest to those who care for ill newborns
The weblog about Behavior
My lifesaving journey...
