Our stay at Children’s Medical Center has finally come to an end. A reason to celebrate, right? I want to have that sense of relief, knowing he no longer requires that level of care, but instead I find myself full of mixed emotions. Some of it certainly comes from having to adjust to a new setting. He’s out of … Continue reading
A change of plans Friday morning kept James in the hospital through the weekend. Not what we hoped for or expected, but if we’ve learned nothing else these past few years, we’ve learned to be flexible. James made sure we knew that right from the start. Early in my pregnancy I began to research birthing options. … Continue reading
The past 3 1/2 weeks in the hospital has given me lots of time to reflect. I’ve thought about many different things, but keep coming back to a few that really stick with me. Some of them are very close to being labeled “regrets,” but I’m trying to keep a positive outlook, so I choose … Continue reading
Another Christmas in the hospital. I’m teetering on the edge between being thankful we’re here, none of the rest of it matters, and feeling sad and sorry that we’re missing out on so much. I’m trying hard to choose thankful, but it isn’t easy. I read about all the wonderful Christmas experiences our friends and family are having … Continue reading
I’ve found over the past 10 or so days in the hospital, that the one thing I’m looking for most is comfort. For someone to tell me everything is going to be ok. For someone to say that James is going to be ok. Most of the time I’m strong, confident, and know in my heart … Continue reading
“He scares me. I’m an ICU doctor, and he scares me.” Those were the words spoken as James was being admitted to ICU on Friday. He had already been in the hospital for a few days, but now he was working much too hard to breathe and needed help right away, before things got a lot worse. He was … Continue reading
I’ve been reflecting a lot on James’ NICU stay the last couple of months. Its that time of year. Two years ago we had about 4 months of James’ NICU stay behind us, but some very important weeks were coming up. So many amazing people contributed to his care in the NICU. People we will … Continue reading
“How’s James doing in daycare?” is one of the most common questions I receive right now. I love that so many people are interested and hopeful that he’s doing well. And he is doing well. He cries some when I drop him off (and I still do too…), but when he’s picked up he’s happy, … Continue reading
Andy spent every day and most nights at the hospital with me. On Monday, August 2, he decided to spend some time at home. It looked like we were in for a long hospital stay, and financially we weren’t prepared. He needed to make some phone calls and find ways we could save money over … Continue reading
Dr. Magee was an amazingly calm force during the chaos of that evening. He spoke slowly and deliberately. He gave us the bad news first, and prefaced it with “I’m only going to say this once.” Then he gave us some hope, and told us it was still possible to have a good outcome. He … Continue reading
NICU Babies. Parent Support.
A wandering exploration of all things of interest to those who care for ill newborns
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