I love looking back at old photos of James. Some bring tears, but many bring smiles and laughter. During his recent hospitalization, many doctors and nurses commented about the position they found James in most often; looking ready for the beach. Made me think back to the first time we saw him in that position. James was about … Continue reading
Time is so precious. It definitely seems to be going faster, I guess that comes with age. And no matter how early the day starts, or how late it ends, there never seems to be enough of it. There are so many demands on our time each day. Some of them are welcome while others … Continue reading
Medications. They are the life-line of the nicu. Something is always being given, usually multiple meds at once. At times they’re lined up, too many meds and not enough lines to give them. You wonder about side effects, and research them if you’re brave, but you rarely say no because these medications are helping your … Continue reading
One of the most beautiful things to witness is the natural development of a child. To see them progress from totally dependent infants to independent little toddlers is remarkable. I think that’s one of the reasons I enjoyed my job in ECI so much. Yes, we were “intervening” and working hard at accelerating developement, but … Continue reading
Our stay at Children’s Medical Center has finally come to an end. A reason to celebrate, right? I want to have that sense of relief, knowing he no longer requires that level of care, but instead I find myself full of mixed emotions. Some of it certainly comes from having to adjust to a new setting. He’s out of … Continue reading
A change of plans Friday morning kept James in the hospital through the weekend. Not what we hoped for or expected, but if we’ve learned nothing else these past few years, we’ve learned to be flexible. James made sure we knew that right from the start. Early in my pregnancy I began to research birthing options. … Continue reading
The past 3 1/2 weeks in the hospital has given me lots of time to reflect. I’ve thought about many different things, but keep coming back to a few that really stick with me. Some of them are very close to being labeled “regrets,” but I’m trying to keep a positive outlook, so I choose … Continue reading
In honor of Nurse Appreciation Week, this Flashback Friday is a re-post of a blog from January. James had just left the ICU after almost three weeks, and I wrote this to thank the amazing nurses and RT’s that took care of him and us during such a difficult time. During every hospitalization, and James … Continue reading
Another Christmas in the hospital. I’m teetering on the edge between being thankful we’re here, none of the rest of it matters, and feeling sad and sorry that we’re missing out on so much. I’m trying hard to choose thankful, but it isn’t easy. I read about all the wonderful Christmas experiences our friends and family are having … Continue reading
I’ve found over the past 10 or so days in the hospital, that the one thing I’m looking for most is comfort. For someone to tell me everything is going to be ok. For someone to say that James is going to be ok. Most of the time I’m strong, confident, and know in my heart … Continue reading
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My lifesaving journey...
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