We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs. Had a few … Continue reading
Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading
Sitting in a hospital room, watching James sleep, tracking his vitals on a monitor. An all too familiar situation. We’ve been here a few times before, but this time there’s one very big difference. This time he’s not just recovering, he’s getting ready for a new beginning. One that starts with a well-nourished, healthy little boy. That makes … Continue reading
Guest post today by my husband, Andy. He shares a little of his perspective on James’ NICU journey. Thank you Andy! The Brits have a saying that is quite unique and very random sounding to those who have never heard it before. “And Bob’s your uncle.” For those who are unfamiliar with the saying, it means that … Continue reading
I can’t believe it’s been three years. In some ways it feels like just yesterday, and in others it feels like a lifetime ago. For three years James has amazed and surprised me, made me smile more than ever, made me laugh every day, kept me on my toes, brought wonderful people into my life, shown me … Continue reading
August is Breastfeeding Awareness Month. For some moms with babies in the NICU breastfeeding isn’t an option for quite some time. In order to provide the much-needed breast milk to their babies, many moms choose to pump. I pumped for four months for James without much success. But, when feedings are measured in fifths of a … Continue reading
I was getting ready to work on my blog, prepared to write about truly enjoying James’ third birthday without any of the anxiety that has come each year at this time, when I read End of Life, at Birth, an Op-Ed piece that appeared in The New York Times August 5th. The author, April R. Dworetz, is a neonatologist and an assistant professor … Continue reading
Three years. Time truly goes so quickly. Three years ago today our little munchkin was born. In honor of James’ third birthday I want to share a his birth story with you. Some of you read it last November on World Prematurity Day, but many of you are new to 22w6d. I want you to … Continue reading
We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then getting what you ask for. It doesn’t happen often, so when it does it’s a moment worthy of … Continue reading
My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’ evaluation at The Kennedy Krieger Institute. (It was even better than I hoped!) We began … Continue reading
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My lifesaving journey...
22w6d 