A friend of mine would pose that question whenever we had discussions about preemies and gestational age. She didn’t say it quite that bluntly, but did clearly state that James could have been 23 weeks and 3 or 4 days when he was born. In fact, she thinks it is likely he was 23 weeks and some number of … Continue reading
The wonder of a child is priceless, especially this time of year. I enjoy watching James’ reaction to the beautiful lights that decorate our neighborhood. He gets so excited just looking out the window at our neighbors’ colorful display. I can’t wait to see what he thinks of the Christmas tree, and then see his reaction Christmas morning. Fingers … Continue reading
Today is World Prematurity Awareness Day. In honor of that I created a little video that highlights photos of James and his journey after being born early. I was aware of prematurity before James was born, but I didn’t fully understand the impact prematurity can have on a child and family until we went through … Continue reading
James has never been one to have huge meltdowns or unmanageable tantrums. Believe me, we’re thankful and know that we’re very fortunate. They’ve been happening a little more frequently since we moved. In order to get a handle on this, and to get some insight into how best to help James in all areas of … Continue reading
James rolls with most things, we’re very fortunate in that regard. He had a couple of weeks when screaming increased, he didn’t sleep well, and he would lead me to the car and want to “go.” Heartbreaking for sure. He’s good now, though. When we pull up in our driveway he exclaims, “We’re home!” (Or says, … Continue reading
Some experiences are too cool for words, and this was one of them! Well, maybe just a few… James had never been in a bounce house of any kind until just a few days ago. He’s hooked, big time! He had the most amazing smile once he started to figure it out. Even the ‘bounce … Continue reading
We finally received our phone call from neurology on Monday. Not exactly the news we wanted to hear, but definitely better than it could have been. In their words, his MRI “is abnormal, but sooooo much better than we expected given his birth history.” James has two abnormalities in his brain. One is responsible for … Continue reading
Just over a year ago, as we were getting ready to take James to Baltimore for an important evaluation, we were specific in requesting exactly the outcome we wanted. We had one important goal for that trip. We put it out there, making our request known to the universe, and we achieved our goal. We find … Continue reading
It’s been a big couple of weeks around here. So many new things happening all at once. No wonder James is experiencing some anxiety. Poor little munchkin. I’m so grateful to the wonderful instructors at Music Together Dallas who are helping us work through his anxiety so he can enjoy music class again. Thursday we … Continue reading
I know this is long and full of too many facts, but it’s important to me. Thanks for taking a look. Last fall, while James was at the Kennedy Krieger Institute, several of the therapist who were working with him had some concerns that they shared with myself and his doctors. Concerns regarding autism. They … Continue reading
The weblog about Behavior
My lifesaving journey...
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