Just over a year ago, as we were getting ready to take James to Baltimore for an important evaluation, we were specific in requesting exactly the outcome we wanted. We had one important goal for that trip. We put it out there, making our request known to the universe, and we achieved our goal. We find … Continue reading
Category Archives: Life After NICU
Music and Anxiety, A Puzzling Combination
If you’ve followed along with James for any time, you know that he LOVES music. Music has had a huge impact on him right from the beginning. We sing all kinds of songs with James, from your typical toddler stuff, to oldies, The Beatles, Ramones, TSO, Bon Jovi…he loves it all. He sings much more … Continue reading
ASD and the Search for Appropriate Therapy
I know this is long and full of too many facts, but it’s important to me. Thanks for taking a look. Last fall, while James was at the Kennedy Krieger Institute, several of the therapist who were working with him had some concerns that they shared with myself and his doctors. Concerns regarding autism. They … Continue reading
Struggling Through the Winter Blues
About a year ago I was just finishing my first month as a stay-at-home-mom. It was new and exciting and I loved every bit of it. And I still love being home with James. I feel very fortunate to have this time with him. He’s growing and changing all the time and I get to … Continue reading
James’ New Friend, The Pigeon
This is the most common sight in our house right now. James has always adored books. From an early age he used to pull every one out to find exactly the one he was looking for, then flip through the pages looking at all the pictures. He did go through a phase when he wanted … Continue reading
Recovering From RSV and Pneumonia, One Year Later
One year ago today we brought our little guy home from Our Children’s House, a rehab facility in Dallas. For those of you new to 22w6d, James spent five weeks in the hospital and ten days at OCH last winter due to RSV and pneumonia. We left OCH before James was ready, but he was … Continue reading
Jumping Back In; A Little James-Update
Where to begin…so much time has passed, and my little guy has made amazing changes these last few months. I think an old-fashioned update with a few cute photos is in order. First of all, James is still eating! He’s growing and gaining weight – he even gained half a pound while fighting off a … Continue reading
Baltimore, Day 1
Counting down the final minutes of our first day. We made it. I’m hoping this is the toughest it’ll get, although I’m not entirely convinced that will be the case. A few of my favorite things from today: Everyone is incredibly kind. Seems a little cliché to call that one of my favorite things, but when … Continue reading
Butterflies and Restlessness, The Night Before it All Begins
We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs. Had a few … Continue reading
James and His Tube, A Little Update
Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading