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Category Archives: Life After NICU

Just a Phone Call, Please
Life After NICU

Just a Phone Call, Please

Posted on May 8, 2014 by Alison • 6 Comments

Just over a year ago, as we were getting ready to take James to Baltimore for an important evaluation, we were specific in requesting exactly the outcome we wanted. We had one important goal for that trip. We put it out there, making our request known to the universe, and we achieved our goal. We find … Continue reading →

Music and Anxiety, A Puzzling Combination
Life After NICU / My Days With James

Music and Anxiety, A Puzzling Combination

Posted on April 10, 2014 by Alison • 3 Comments

If you’ve followed along with James for any time, you know that he LOVES music. Music has had a huge impact on him right from the beginning. We sing all kinds of songs with James, from your typical toddler stuff, to oldies, The Beatles, Ramones, TSO, Bon Jovi…he loves it all. He sings much more … Continue reading →

ASD and the Search for Appropriate Therapy
Life After NICU

ASD and the Search for Appropriate Therapy

Posted on March 31, 2014 by Alison • 4 Comments

I know this is long and full of too many facts, but it’s important to me. Thanks for taking a look. Last fall, while James was at the Kennedy Krieger Institute, several of the therapist who were working with him had some concerns that they shared with myself and his doctors. Concerns regarding autism. They … Continue reading →

Struggling Through the Winter Blues
Life After NICU

Struggling Through the Winter Blues

Posted on February 28, 2014 by Alison • 2 Comments

About a year ago I was just finishing my first month as a stay-at-home-mom. It was new and exciting and I loved every bit of it. And I still love being home with James. I feel very fortunate to have this time with him. He’s growing and changing all the time and I get to … Continue reading →

James’ New Friend, The Pigeon
Life After NICU / My Days With James

James’ New Friend, The Pigeon

Posted on February 25, 2014 by Alison • 5 Comments

This is the most common sight in our house right now. James has always adored books. From an early age he used to pull every one out to find exactly the one he was looking for, then flip through the pages looking at all the pictures. He did go through a phase when he wanted … Continue reading →

Recovering From RSV and Pneumonia, One Year Later
Flashback Friday / Life After NICU

Recovering From RSV and Pneumonia, One Year Later

Posted on January 24, 2014 by Alison • 2 Comments

One year ago today we brought our little guy home from Our Children’s House, a rehab facility in Dallas. For those of you new to 22w6d, James spent five weeks in the hospital and ten days at OCH last winter due to RSV and pneumonia. We left OCH before James was ready, but he was … Continue reading →

Jumping Back In; A Little James-Update
Life After NICU / My Days With James

Jumping Back In; A Little James-Update

Posted on January 21, 2014 by Alison • 1 Comment

Where to begin…so much time has passed, and my little guy has made amazing changes these last few months. I think an old-fashioned update with a few cute photos is in order. First of all, James is still eating! He’s growing and gaining weight – he even gained half a pound while fighting off a … Continue reading →

Baltimore, Day 1
Life After NICU

Baltimore, Day 1

Posted on September 16, 2013 by Alison • 1 Comment

Counting down the final minutes of our first day. We made it. I’m hoping this is the toughest it’ll get, although I’m not entirely convinced that will be the case. A few of my favorite things from today: Everyone is incredibly kind. Seems a little cliché to call that one of my favorite things, but when … Continue reading →

Butterflies and Restlessness, The Night Before it All Begins
Life After NICU

Butterflies and Restlessness, The Night Before it All Begins

Posted on September 15, 2013 by Alison • 2 Comments

We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things going, and a little nervous about what to expect for all of us. Praying this is exactly what James needs. Had a few … Continue reading →

James and His Tube, A Little Update
Life After NICU

James and His Tube, A Little Update

Posted on September 10, 2013 by Alison • 4 Comments

Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process the day, it helps much more than I realized. It’s my only therapy, and wow, do … Continue reading →

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About Us

  • Telling Our Story
  • The Details

Blogs I Follow

  • Hand to Hold
  • All Things Neonatal
  • The Behavior Analyst
  • Today's Dose of Sanity
  • Maribel's Kidney Story

Links

  • An Early Start
  • Kasey Mathews, Author of Preemie: Lesson in Love, Life and Motherhood
  • Life With Jack, The Story of Our 23 Week, Miracle, Micro-Preemie
  • National Premature Infant Health Coalition
  • Project Linus

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Recent Posts

  • A Little Birthday Rant
  • The Need for Change
  • World Prematurity Awareness Day 2016
  • PB 101 – Parenting One Mistake at a Time
  • Kangaroo Care Awareness Day 2015

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